Sharing concerns and developments can also contribute to the crusade to find a cure and treatments for the disease. It also helps the scientific and medical professionals who are working tirelessly on our cause to establish patterns. Please complete the form below to add your own case study to those already featured:
Part 1 – this information will appear in the Case History Section of this site.
Name of Patient:
Age:
City :
Areas of body affected:
Medication (please give details of all medications tried, any side affects and if they were of any benefit:
Personal History
Comments and suggestions:
Part 2 – this information will not appear on this site but will be kept for our records in accordance with our Privacy Policy.
Full Name:
Email Address:
Parent's name (if reporting for child):
Address:
Telephone number:
Consultants Details (please give details of Consultants approached and their hospital address):