MELORHEOSTOSIS PROGRAMME 11-12 May 2007

FRIDAY

9.00 Chair: Professor Paul Wordsworth
 Introduction to melorheostosis and this meeting

9.10 Genetic findings – Professor Geert Mortier

9.30 New observations in melorheostosis – Dr Michael Whyte

9.50 Chondrocalcinosis/Melorheostosis – Dr Yun Zhang

10.10 The Azores Experience – Jacome Armas

10.30 COFFEE

10.50 Chair: Dr Roger Smith
 Clues from other diseases – Professor Matthew Brown

11.10 Pathology – Professor Nick Athanasou

11.20 Radiology – Dr David Wilson

11.30 Medical management – Professor Paul Wordsworth

11.40 Surgical management – Mr Martin McNally

11.55 Chair, Dr Michael Whyte
 Panel discussion with patients

12.30 LUNCH

13.45 Individual patient’s discussion with experts  (Blood sampling in parallel)

15.00 TEA

15.30 Chair: Paul Wordsworth
 Educational needs: the role of patients, specialist centres, websites and patient groups – introduced by Professor Paul Wordsworth

16.00 Proposals for future research – (TBA but ? Kirsten Petrie/Jim Triffitt/Yun Zhang)

16.30 Fundraising – Melorheostosis charity

17.00 Summary of meeting – Dr Roger Smith