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FAQs

We intend to dedicate this section of the web site to publish the questions most commonly posed by our visitors. Answers will be provided by both existing sufferers and their families (whose experience is invaluable and comforting), and, where possible, medical experts.

So please feel free to send us any questions you have about the disease or the work and mission of the Melorheostosis Association in the UK. 

For information about the work of the US Melorheostosis Association, go to www.melorheostosis.com

We will always seek to reply quickly and meaningfully by posting both the question and answer here on the site.

Click here to send us your questions.

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