Learn More!

We know how important and comforting it is to be able to reach out to other Melorheostosis sufferers and their families.

Reading about their day-to-day experiences can often help make light of yours

Our friends at the US Melorheostosis Association have already gathered many personal histories; which you're welcome to read by visiting www.melorheostosis.com 

Please Help Us

Sharing concerns and developments can also contribute to the crusade to find a cure and treatments for the disease. 

It also helps the scientific and medical professionals who are working tirelessly on our cause to establish patterns.

To see our case studies database of UK and European Melorheostosis sufferers click here.

To add your profile to our Case Studies database To add your profile to our Case Studies database click here