Whether this is your first time, or you are a regular visitor to our web site ...... welcome! You're in the right place to learn more about who we are and what we're trying to achieve on behalf of the millions of sufferers of rare bone diseases such as melorheostosis.
In this section you'll find information about who runs and maintains the site, what 's in store, and how to find what you want quickly and without fuss.
Who runs this website Our team Contact Us Who runs this website The UK Melorheostosis Association is a pan-European initiative which shares the focus and objectives of the Melorheostosis Association US (www.melorheostosis.com) We are a very active and deeply committed not-for-profit organisation which is dedicated to finding the cause, treatments and cure for melorheostosis.
Like our crusade, this site has 3 main objectives: 1 To reach every UK and European melorheostosis sufferer
2 To support our friends in the US in their bid to provide a virtual meeting point where sufferers and their families can share information and provide mututal support
3 To help unify the worlds of medicine and science in order to find a cure For more information please contact: martine@melo.eu.com www.melo.eu.com is not affiliated with any drug companies or for-profit entities. Funding comes from individuals, foundations, and corporations, in the form of donations and grants. This means that control over editorial content remains solely in the hands of the editorial team.
Our Team
Andrew Carnell – Director
andrew@melo.eu.com
Paul Sowerby – Editor
paul@melo.eu.com
Martine Phipps – UK Programme/Community Coordinator
martine@melo.eu.com
Sara Deacon Elliott, Webevents Ltd – Website Development/Design and Maintenance
sara@melo.eu.com Contact Us
Melorheostosis Association UK, National Office
PO Box 167
Harrogate
HG1 5WL
North Yorkshire
United Kingdom
Telephone: +44 (0) 1423 526682
Fax : +44 (0) 1423 503183
Email
If you have a general enquiry, please have a look at our FAQ section.
If your query is not answered there and you require further information, please contact us directly. | 
